Friday, November 13, 2009

The Plan as I Know It

This is Ethan on Tuesday night. He was admitted on Wednesday morning. I love how even though he's not feeling well, he still has attitude. I think that is actually why he does as well as he does. He's a tough kid.

These 2 pictures (above and below) were taken on Wednesday after we were admitted. His fever was pretty high at this point and he was just not feeling well. Plainly stated, he was simply NOT happy to be back in the hospital.

This picture was taken this morning in the PICU. His fever had broken at this point and he was sweating profusely. He literally left a body length's wet spot that went through 2 layers of bedding. I don't know if you can see it well, but even his hair was seriously wet with sweat.

This last picture was just taken tonight in our new room on the surgical floor. He is still not feeling well (he got a fever again late this afternoon), but I believe that he is now on the right track to recovery.
So, the plan as I know it only takes us to Monday. The only reason why I say that is because Dr. Kaza wants to get another Echo on Monday to check Ethan's heart function. I still don't know how long they will want to keep him after that for antibiotic therapy, but Ethan's chest x-ray this morning confirmed that he does NOT have pneumonia. However, it did show that his lungs are getting "wet" with fluid. He is already on 3 different diuretics so they upped the doses, increased the frequency and changed 2 of them to IV so that they wouldn't get spit out. Hopefully this will work and pull off the fluid from his lungs.
Also, they haven't changed his antibiotics yet, so he is still on Vancomycin and Zosyn. As soon as they get a sensitivity to his staph infection they will switch them around to be more specific to the bugs making him sick. I don't think that Ethan will be able to come home until they are sure that both issues (the infection and wet lungs) are resolved. But we at least have until Monday to try and work it out.
Until then, Tim is taking the next 2 night shifts and I will be there during the days (as opposed to me being there 24/7 like the last few days). We are in room 3087 if anyone would like to call. Overall, I think that although tired, we are holding up well. I attribute that to all of the physical, spiritual, and moral support that we've received from all of you. Thank you.


The Simmons Family said...

He looks less than thrilled to be back in the hospital :(. I'm glad that things are getting figured out and hope that Monday brings you GREAT news and a wonderful echo!

One Happy Heart Family said...

Glad things are getting better. I love the attitude pictures. Hey there is a little guy right next to you Teagan, 3088 don't know if you have met his mom Amanda, but she would love to meet some other heart moms at PCMC. Just thought I would let you know. I know it's easier to cope if you have someone to chat with. Yea for him feeling a little better.

buddens said...

He's so cute. I hope you have a good weekend!

Tiffany said...

I sure admire you. I'm so glad you have so many wonderful family and friends who are helping you right now, you guys definitely deserve it. Hang in there!

Ty and Ber said...

What a tough litle guy. I hope they figure out the bug that is causing his temp and that they can get that fluid off his lungs. Good luck with the echo on MOnday, hopefully all looks well

~Rachel said...

Thanks for updating us with your posts. I hope he has a good weekend and that by Monday he will be on the path that leads you all home. We love you all and you remain in our daily prayers.
Tell Ethan Aunt Rachie loves him and thinks he is so brave and strong!

cici said...

What a trooper he is. Love the curled up toe in that one picture.
May Monday bring good news and smiles for all of you!

Kyle and Alli said...

I stopped to check in tonight and realized you guys have been on quite the rough recovery road! I am so sorry for all of the unknowns. I will pray that Ethan's infection can be pinpointed and that some strong IV antibiotics will kick it fast and that he can respond to his diuretics. Best of luck!!