Thursday, December 10, 2009


Ethan had a cardiology appointment yesterday. His chest x-ray and EKG both looked good. He still needs to stay on the oxygen at this point because his liver is still enlarged. This should improve over time as his body normalizes to the new pressures from the Fontan, but until then, the oxygen will be helpful at night. Some good news is that we were able to go down on his Lasix to just twice a day which will be nice.

At this appointment we had some labs drawn to check his CRP and ESR again. I just got a call (from the doctor that we saw yesterday), and she consulted with the original Infectious Disease doctor that we saw before we were discharged from the hospital. The long and the short of it is that both his CRP and ESR are coming down (his CRP was 3.7 and his ESR was 21). The bad news is that the Infectious Disease doctor felt like at this point, they should have resolved all together. So what this means is 2 MORE WEEKS OF VANCOMYCIN!!!! Ugh.

I shouldn't complain, but I was REALLY hoping that Friday would have been our last day of the PICC line and the Vanco. I guess that we will just keep plugging away at this infection and hopefully he will be able to have his PICC line out by Christmas.




Ty and Ber said...

I'm glad things are looking up. That is too bad that he still has to be on the Vanco, but there are worse things right?

Kaidence's Mommy said...

That is a bummer. I remember counting down the days when we were doing the IV Vanco and Gentamyocin at home. Cant blame you for wanting to be done. I was excited yesterday because I gave K her last dose of oral antibiotic for the pneumonia. Goodbye fast poopies! I feel silly about that. Oral antibiotics are no big deal, but I just get so happy to be done giving them. One less med. I am glad that at least the numbers are trending down. Good Luck!

Quinney Family said...

we are praying for you guys. hang in there

gatherum1 said...

How frustrating! I for one will be relieved when the PICC line is gone. Hang in there. At least things are going in the right direction.

cici said...

Someone is testing your patience :(
I know how you feel, but this will soon just be a memory too.

Hang in there and give our guy extra hugs from his fanclub ;)

Tiffany said...

That's got to be disappointing, I am sorry :( I'm glad he is doing better generally, even if it is slow-going. You are amazing with how much you handle and how up you seem to be in spite of all these set backs. luv ya!

The Hood's said...

So happy for small steps in the right direction! Best of luck.... hope that things continue to improve!