This last week has been really busy. I've had appointments of various sorts everyday this week. We've been up to PCMC twice to check Ethan's labs, blood pressures, and adjust his medication doses. His cardiologist feels that the dose of enalapril he is on now is a good maintenance dose. However, he does want us to come back in a month for a clinic visit and to have a quick ultrasound to re-check his heart function. He had originally told us that we would do this in 6 months, so I am unsure as to why he changed his mind. I am hoping that it is only to see if the medication is helping and not because he is overly concerned. I am okay with it. I would rather have them check it more often than risk missing something. Ethan still continues to have problems with vomiting. In fact, it seems that I can't keep up on my regular laundry because the machines are always full of bed sheets, blankets, towels, or soiled clothing. But as long as they don't think it is happening because of his heart, we will just keep doing what we have been and hope that he grows out of it soon. Thanks to all of you who keep up on us (especially since I haven't been as good about writing as frequently). You really don't know what it means to feel like people care and support you. Thank you.
----Allison
Saturday, June 21, 2008
Saturday, June 21, 2008
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8 comments:
I'm sorry he's still having trouble vomiting. Even with a perfectly healthy child, it's never fun to see your kids sick, and I can't imagine the extra worry you must go through. You are amazingly strong and handle everything so well! We'll keep praying for you guys.
We're always thinking of Ethan, I hope his vomiting issues get better real soon. These Doctors always seem to change their minds on the direction they want to go with these heart kids, each one it seems so different.
Prayers,
Mike & family
Allison,
You guys have been on my mind a lot this week and I just want you to know that we are thinking of you and yes, praying, for you, your family and especially Ethan. I so admire the way you and Tim have handled this past year and I am so sorry that you guys have to deal with this. I wish there were more I could do, but please know I am thinking of you and if you need to talk or need someone to just listen, I am here.
Love,
Adrian
Vomicking-that little man can't catch a break!!!! We gotta get these dudes together... Thinking of you always...
can you believe that we haven't heard yet on any of it.... I can only imagine that they are super busy...
Allison,
You are a mcuh stronger person than Me. I hope that everything turns out ok. We will keep you and your family in our prayers.Stay strong
Hey babe,
I am so sorry Ethan is still vomiting. It's been a long time. Mack has vomited twice this week and it isn't fun cleaning it up.
Hey, I just found your blog through Owen's blog. I've also got an Ethan with HLHS, born a few months after yours (August 11, 2007). I've read that it's more common for boys to have HLHS than girls but the majority of the ones I've found have been girls so it's nice to know of another boy! Sorry to hear that your Ethan's still having problems with vomiting, I know that's got to be tough.
Heart Hugs,
Julie, Dan & Ethan Miles
ethanscottmiles.blogspot.com
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