Have you ever heard that it comes in 3's? Well, I hope that is true.
You all know about Ethan and his congenital heart problems and all the challenges that come with that. Also, I wrote a post a few months ago about my my sister Karalee's son Austin (who is 7) who was just diagnosed with Muscular Dystrophy. He actually got to make a wish last Saturday through the Make a Wish Foundation to go to Disney World. It was a very special and emotional afternoon. It was also a little bitter-sweet knowing that Ethan will be granted a wish one day when he is older. Although the Make a Wish Foundation is truly an amazing organization, you never want to be in a position to use their services.
Anyway, those were numbers 1 & 2. My brother Darren and his wife Jenn just gave birth to a sweet little girl on Monday night. I was in shock to hear on Tuesday morning that she was being transferred to the local children's hospital for surgery. It turns out that she has Downs syndrome, an imperforate anus, and an AV canal heart defect. She had surgery to create an ostomy on Tuesday and now she just needs to grow for a few months until she will need open heart surgery to correct her heart defect. I was able to go up and see her last night and she is just beautiful. She is also doing amazingly well.
Darren and Jenn have been such an example of strength and are handling it all much better than I would have. They have both said that the Downs syndrome is not a big deal but were both pretty upset when they found out about her heart defect. Of course they are feeling the array of crazy emotions that come with ALL of this but they really appear to be keeping it together. I just know what a mess I was with Ethan and they have shown much more strength than myself.
So, honestly, what are the odds that 3 completely different medical conditions happen in the same family when there is absolutely NO family history of ANY of this on either sides of our families? I am not sure what the odds are, but I do feel that it is no accident. Looking back at my experience with Ethan, there were countless things that were prepared for us before he was even born. I feel that these children have chosen us and trust us to love and care for them in our homes.
Now, this is not to imply that all the other children aren't special as well. I just know that these children are here for a reason and that our family is better because of them. I also know that it is a privilege to have them in our family and we have had and will continue to have many blessings because of them.
----Allison
Thursday, September 25, 2008
What Are The Odds?
Thursday, September 11, 2008
A New Addition?
Wednesday, September 10, 2008
A year ago today...
Autumn has always been my favorite time of year. I love the crisp air and the changing leaves. I love the fall holidays and starting of school. There is just something about fall that brings a calm feeling over me.
The other day as I found some quiet time and was reflecting on my life, I realized that exactly one year ago today, Ethan went in for his 2nd surgery. It brings back so many memories when I think back to all that has happened during this time. The majority of these memories are happy ones and continually remind me how very blessed we have been as a family.
As well as looking back over this last year, my mind wanders and I can't help but think forward to the events destined to take place next autumn. We are currently in a "quite period" when it comes to Ethan's health. True, he's had some small issues, but its been manageable and I guess that is expected when you only have half of a heart. And although (so far) it has been a quiet year, as this next year progresses, Ethan's health is expected to decline as he grows which will indicate when his 3rd surgery will be needed. We've been told by our cardiologist that even if he doesn't grow out of his current "plumbing" by then, we should expect to have his Fontan surgery next fall.
Typically, Spring is associated with new beginnings. However, as much as I dread his next surgery, I am grateful that it will be the Fall which will bring Ethan another chance to live a more "normal" life.
---Allison
Thursday, September 4, 2008
Check it Out!
So it is still under construction but we now have the basics of our Aid in Africa blog up and running. After creating this new blog with my friend, Carie, it makes me that much more excited for this amazing opportunity. I hope you find it interesting and will follow along with our journey.
---Allison